PEDIATRIC CANCER RESOURCES

Please browse through the NATIONAL Support and Resource organizations below. This list was put together with the intent to supply families with useful information and resources in one place.  All organizations listed below come highly recommended by our Momcology members as reputable sources of information and care. We always encourage you to research the organizations below to ensure they are a good fit for your family. We look forward to continuing to add resources to our list as they are identified by our member community.

 

~CHILD FOCUSED RESOURCES~

 

BATTLING BUDDIES:
Scentsy Buddies are sent to children fighting cancer. Note: This is a Facebook page.
https://www.facebook.com/pages/Battling-Buddies-Comfort-for-Children-with-Cancer/228052250566201

THE BLANKET FAIRY:
The Blanket Fairy's Mission is to make and donate as many blankets as she can to children with pediatric cancer.
http://theblanketfairy.weebly.com/

C.C. BEAR:
This cuddly bear created by Children’s Cancer Research Fund has become a part of homes, classrooms, and daycares across the country, providing comfort and hope to hundreds of children and their families who are affected by cancer and other life-threatening diseases.  Request  a C.C. Bear today.
http://www.childrenscancer.org/main/cc_bear/

GABE’S CHEMO DUCK PROGRAM:
The Chemo Duck Program helps introduce children and families to their new life and encourages healing through the power of play therapy.
http://chemoduck.org

JOY JARS:
JoyJars® were created by Jessica Joy Rees during her courageous 10 month fight with two brain tumors. Jessie used her JoyJars® to spread hope, joy and love to children fighting life altering medical illnesses. JoyJars® are stuffed with love and so much more.
www.joyjars.org

CAPES 4 HEROES:
Superhero capes for kids with disabilities, kids with life threatening illnesses and kids who just need to feel empowered.
http://capes4heroes.com

MONKEY IN MY CHAIR:
A beneficial program that helps cancer patients stay connected to their classmates.
http://www.monkeyinmychair.org/

PEACHES NEET FEET:
Provides custom, hand-painted shoes to children living with disabilities and fighting serious illnesses.
http://peachsneetfeet.com/

TUCKER’S TOY BOX:
Strives to enhance the lives of families who are courageously facing childhood cancer treatment. Tucker Arnold Foundation would love to put a toybox in every oncology playroom in the United States.
http://www.tuckerstoybox.org 

 

~FAMILY RESOURCES~


BE THE MATCH:
Offers support and resources that are specific to young transplant patients and their families to help you through the transplant journey.
http://bethematch.org/For-Patients-and-Families/Children-and-transplant/

Join the National Bone Marrow Registry and hold a Bone Marrow Drive in your community through Be The Match.
http://bethematch.org/Support-the-Cause/Donate-bone-marrow/Join-the-marrow-registry/

CARINGBRIDGE:
Personalized websites that help friends, families and loved ones connect when it matters most.
http://www.caringbridge.org/

CHILDREN'S CANCER RESEARCH FUND:

CCRF invests in lifesaving, leading-edge research in the prevention, diagnosis, treatment and cure of childhood cancers and blood-related disorders.  Children's Cancer Research Fund has provided early-stage research grants that empower researchers to pursue bold ideas that lead to innovative treatments and that attract additional funding. Children's Cancer Research Fund accelerates discovery by providing a steady stream of unrestricted funding, critical in an environment where the incidence of childhood cancer is increasing, while national funding is decreasing. To learn more visit childrenscancer.org

DKMS:
Empowering people to take action, give bone marrow and save lives.  Throw a Swab Party.
http://www.deletebloodcancer.org

GOLD HOPE PROJECT:
A group of international photographers that have come together to photograph families completely free, with the hopes of bringing about awareness of and raise funds for Pediatric Oncology Research and treatment.
http://www.goldhopeproject.com

HOPEKIDS:
Provides ongoing events & activities and a powerful, unique support community for families who have a child with cancer or some other life-threatening medical condition.  We surround these remarkable children and their families with the message that hope can be a powerful medicine. Four chapters: Arizona, Minnesota, Texas and Utah.
http://www.hopekids.org

ICING SMILES:
Provides custom celebration cakes and other treats to families impacted by the critical illness of a child.  The goal is to create a custom cake for the ill child, or their sibling, that provides a temporary escape from worry and creates a positive memory during a difficult time.
http://www.icingsmiles.org/

KNOW THE GLOW:
An awareness campaign to share an educational eye health warning message with all parents around the world.
http://www.knowtheglow.org

MAKE A WISH:
Grants the wish of a child diagnosed with a life-threatening medical condition in the United States and its territories through local chapters.
http://www.wish.org/

MAX LOVE PROJECT:
Dedicated to providing families fighting childhood cancers and life-threatening conditions with accessible, practical, and kid-friendly whole-body wellness.
http://maxloveproject.org

LIGHTHOUSE FAMILY RETREAT:
Serves children with cancer and their families at a seaside retreat to help them to laugh, restore family relationships and find hope.
http://www.lighthousefamilyretreat.org/

PAC2- PEOPLE AGAINST CHILDHOOD CANCER:
Mission is to raise awareness of Childhood Cancer and to unite the childhood cancer world to speak as "One Voice United Against Childhood Cancer". Together, we can accomplish more.
http://curechildhoodcancer.ning.com

STUPID CANCER:
Empowers young adults affected by cancer through innovative and award-winning programs and services. They are the nation's premier patient advocate for this underserved population and serve as a bullhorn for the young adult cancer movement.
http://stupidcancer.org/

SUPERSIBS:
Ensuring that onsite sibling support is incorporated into pediatric oncology care. Outreach allows for informing and equipping hospital, camp and pediatric oncology organization professionals to provide front line integrated sibling support.
http://www.supersibs.org/

THE TRUTH 365:
Emmy Award-Winning grass-roots documentary film and social media campaign that gives a voice to all children fighting all forms of cancer.
http://www.thetruth365.org

UNITED HEALTHCARE CHILDREN’S FOUNDATION:
Dedicated to enhancing the quality of children's lives by providing financial assistance to help families gain access to medically related services that are not covered, or not fully covered, by the available commercial health insurance plan, and that may have the potential to significantly enhance children's clinical conditions.
http://www.uhccf.org

 

~INFORMATION RESOURCES~

 

ALEX’S LEMONADE STAND:
A comprehensive list of many organizations that exist to provide support by offering services which range from financial assistance to appearance and fertility concerns, survivorship concerns and bereavement service.
http://www.alexslemonade.org/childhood-cancer/resources?tid=All&tid_1=All

AMERICAN CHILDHOOD CANCER ORGANIZATION (ACCO):
Resources for parents of childhood cancer include books, cancer kid camps, hats and wigs, free airline flights and lodging, support organizations, and more.
http://www.acco.org/Information/Resources/ResourcesOutside.aspx

CHILDHOOD CANCER GUIDES:

Childhood Cancer Guides is a 501(c)(3)nonprofit that publishes award-winning books for families of kids with cancer and survivors of childhood cancer. Our books are a mix of accurate medical information that is reviewed by renowned experts in pediatric oncology and true stories—practical, poignant, moving, funny—from hundreds of children with cancer, their siblings, and their parents. Our guides empower families with knowledge, practical suggestions, emotional support, and helpful resources. www.childhoodcancerguides.org

CHILDREN’S NEUROBLASTOMA CANCER FOUNDATION:
A leading source for neuroblastoma information and resources. Comprised of families, committed to finding a cure for neuroblastoma through research, education, awareness and advocacy..
http://www.cncfhope.org

CHILDREN’S ONCOLOGY GROUP (COG):
Patient and Families website provides you with reliable information to guide you throughout all phases of the childhood cancer experience.
http://www.childrensoncologygroup.org/index.php/patients-and-families

CURESEARCH FOR CHILDREN'S CANCER:
There’s a lot to manage when your child’s been diagnosed with cancer. ​To help, C​ureSearch developed the CancerCare mobile app to allow your family to organize treatment dates and medication schedules, track side effects and blood counts, and access ​cancer​ c​are​ resources​ right from the app. http://curesearch.org/CureSearch-CancerCare-App

KIDS V CANCER:
Promotes pediatric cancer research by identifying structural impediments at key junctures in the research process – new drugs, tissue donation and access to funding – and developing strategies to address them.
http://www.kidsvcancer.org​​

LEUKEMIA AND LYMPHOMA SOCIETY:
Information source on blood cancers and has developed Student Series Programs which engage school age children in the fight against cancer. http://www.studentseries.org
 

LIDDY SHRIVER SARCOMA INITIATIVE:
Works with individuals, families, communities and medical teams around the world to offer support, to provide expert information and to fund promising sarcoma research.
http://sarcomahelp.org

NB GLOBE:
Reports on published studies, meetings, and clinical trials enrolling patients.  Some general information relating to pediatric oncology topics will be included, but the focus is on what interests parents of children with neuroblastoma. 
http://www.nbglobe.com

THE NEUROBLASTOMA AND MEDULLOBLASTOMA TRANSLATIONAL RESEARCH CONSORTIUM (NMTRC):
Mission is to create a national collaborative effort of researchers, oncologists and family advocates to bring forward new therapies for children with relapsed neuroblastoma and medulloblastoma with the goal of improving the quality of life and survival of children with neuroblastoma and medulloblastoma.
https://nmtrc.org/about/

 PEDIATRIC BRAIN TUMOR FOUNDATION:
A national voluntary health nonprofit that works to eliminate the challenges of childhood brain tumors. As the world’s largest non-governmental source of funding for childhood brain tumor research, their mission is to cure the kids.
http://www.curethekids.org

THE SARCOMA FOUNDATION OF AMERICA:
Advocates for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.
http://www.curesarcoma.org

ST. BALDRICKS:
The Foundation coordinates its signature head-shaving events worldwide, where volunteers get bald to stand in solidarity with kids fighting cancer and raise money to support life-saving childhood cancer research.  Please view the St. Baldrick’s Childhood Cancer Ripple Effect video here:
http://vimeo.com/56710471

ST. JUDE:
The following caregiver resources have been developed through staff and patient family collaboration at St. Jude. They are intended to support education needs.  These resources include a Medical Terminology and Drug Database and an A to Z Medication List.
http://www.stjude.org/caregiverresources



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