Research Opportunities

With the growth of Momcology as a nationally recommended peer support network, we are now being approached to help University and Clinical Researchers to efficiently connect to patient families who may be able to contribute to funded childhood cancer based research and studies. Momcology believes in helping to advance research both financially through fundraising and directly through our experiences as patient families.  When we can help coordinate families to research quickly, we believe we are accelerating the potential outcomes available from it.  Please see our current open collaborations below. 

*Momcology does not receive any compensation for connecting parents to these research opportunites.  Momcology will be noted under the acknowledgements of any publications or presentations of study findings as a recruitment resource. All studies listed below have been reviewed by Momcology and determined to be a good fit for our community prior to posting.  


Past Opportunity (Now Closed):

Requirements to participate:

  • Child are 2-10
  • Active cancer treatment within the past 6 months
  • Parent/Guardian living with the child
  • Parent/Guardian is fluent in English

Letter from Principal Researcher:

Dear Momcology® Families,

Researchers at Boston University are conducting a research study on the sleep behaviors and sleep quality in children who have been treated for cancer.  You will be asked to complete a short questionnaire on your child's sleep behaviors and sleep quality.  At the end of the survey, there will be an option of accepting or declining an opportunity for a brief phone interview.  You will also be able to participate in a raffle for a $50 Amazon gift card at the end of the survey.  

Thank you and please click the button below to start the study.

 Hyun (Monica) Kim, M.A., M.S.
Doctoral Student in Clinical Psychology Boston University


Past Opportunity (Now Closed):

Requirements to participate:

  • Your child is currently in treatment or was in treatment during the last 365 days,
  • Your child is between the ages of 3 and 18,
  • You are the person who handles most of the child's medical needs and daily care, and
  • You are at least 18 years old and can read and understand English.

Letter from Principal Researcher:

Dear Momcology® Families,

Has your child undergone cancer treatment during the past year?

Researchers at the University of Michigan are studying what, when, and why primary caregivers (i.e., parents or other people who provide care at home) tell children with cancer about their illness. The information from the survey will be used to help parents and patients in the future.

Please consider taking this survey if:

  • your child is currently in treatment or was in treatment during the last 365 days,
  • your child is between the ages of 3 and 18,
  • you are the person who handles most of the child's medical needs and daily care, and
  • you are at least 18 years old and can read and understand English.

Your survey answers will remain completely anonymous and will help the researchers better understand caregiver needs.  The survey will take about 25 minutes to complete. Click the button below to learn more about the study and take the survey.

Thank you for taking the time out of your busy schedule to help future caregivers who will be walking in your shoes. Your response to this survey is sincerely appreciated! 

Warm regards,

Gregory Yanik, M.D.

Leland and Elaine Blatt Family Professor of Pediatric Oncology

Blood and Marrow Transplant Program

Professor of Pediatrics

University of Michigan Medical Center


Past Opportunity (Now Closed):

Requirements to participate:

Parent of a childhood cancer survivor, At least one year off treatment, Child is younger than 13 years old, Online survey, Approximately 10 minutes in length, No compensation available

Letter from Researcher:

Hello fellow parents!

I’m the father of a boy diagnosed with a mixed-grade glioma (brain tumor) in 2011. Today, he’s a thriving 3rd grader who still faces a lot of challenges. His journey has inspired me to become a researcher of childhood cancer survivorship. And that’s what I want to ask you about today.

I’m looking to learn from parents of childhood cancer survivors. My goal is to learn about parent experiences of survivorship follow-up care for their children, and how social media might play a role in survivorship health. The information gathered in this study will help us create programs that can make survivorship health education easy and useful for busy parents and children.

If you’re a parent of a childhood cancer survivor who is under 13 years old and at least 1 year out of treatment, and you’re interested in participating, all you need to do is click on this link: https://info-survey.hs.uci.edu/redcap/surveys/?s=9RMCTMCJ8T

You will be sent a short, confidential online survey. We estimate the survey will take no longer than 10 minutes. And your personal information will not be associated with your answers and will be fully deleted after the study is complete.

In the survey, you will have the option to sign up for an hour-long interview about your survivorship care experiences. It is completely optional.

If you have any questions or concerns, please contact me at jwilford@uci.edu .

Thanks so much for your time,

Justin Wilford, PhD Program in Public Health University of California, Irvine


Past Opportunity (Now Closed):

 

Requirements to participate:

Acute Lymphoblasitc Leukemia Parents, Active in Treatment, Phone Interview, 30 Minutes, $30 gift card, must live in the United States 

Letter from Researcher:

Dear Momcology Families,

We are very excited to have received funding from the St. Baldrick’s Foundation to conduct research to understand how parents cope with their child’s cancer. You can learn more about this study here: http://www.aspph.org/grant-awarded-to-suny-buffalo-community-health-researcher/

We are hoping to interview parents of children who are currently on active therapy for Acute Lymphoblastic Leukemia. If that describes you, we would like to invite one parent from your family to participate in a short telephone interview. The ultimate goal of this study is to design programs that help parents manage their child’s cancer treatment.

To thank you for your generosity in helping us with this research, participants will receive a $30 gift card.

We hope that you are able to participate in our study. Please Private Message Elizabeth Gage Bouchard if you are interested in learning more, or you can also reach me directly at (716) 829-6748 or by email at eagage@buffalo.edu. I would love to hear from you.

Thank you,

Elizabeth Gage-Bouchard, PhD
School of Public Health and Health Professions University at Buffalo 

 

 



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